|
|
#1
25th July 2010, 06:34 PM
|
||||
|
||||
Hollers
We're off on our hollers tomorrow Niamh's a little chesty & has blue tinge round her mouth but its clearing with physio. We're very excitied. We're home Fri then its straight into her birthday party on Sun, we're in Leicester on Tue 3rd for her PCD test & then my brother's home for a week so busy busy busy. Will be thinking of all our lo's & keeping them in my prayers.
__________________
 ErinMum to Niamh age 6 attending regular school (with full time carer) diag. 20 wk scan with Heterotaxia - left atrial isomerisn, atresia & bowel malrotation (surgical correction at one day), two left lungs, trachea adnormality, bronchietatis, uninary incontenience, absent spleen, gastro-oesephageal reflux, aspiration of liquids, coroanry sinus rhythm, PDA delayed closure, inferior vena cava abnormality, persistent chest infections & pneumonias, possible PCD & Charlie aged 3 HH 
|
|
#3
25th July 2010, 06:48 PM
|
||||
|
||||
|
Have a great holiday. Hope you get some time to take it easy!
__________________
Nikki Married to Daryl.Mum to George, born June 07, with large VSD, over-riding aorta, pulmonary valve restriction (described by some as TOF). VSD and PFO repaired by OHS Nov 07 at Bristol Children's Hopsital. Under review for sub pulmonary stenosis. Asthma. Doing brilliantly. Also mum to Ellen, born Nov 08 (HH, but a little madam!).
|
|
#4
25th July 2010, 07:48 PM
|
||||
|
||||
|
Have a great time Sandra.
Victoria x
__________________
 Mum to Phoebe aged 4 who was diagnosed with a large ASD whilst in hospital being treated for sickness & dehydration. ASD closed and PDA ligated 10/03/09 by OHS. Phoebe also has Duane's syndrome which is an eye defect where her left eye doesn't move outwards, it can be related to heart defects. She was diagnosed as failure to thrive, but nothing much was ever done about it, she's still a rubbish eater, but it doesn't affect her at all...I don't know where she gets her energy from!!!
|
|
#5
25th July 2010, 08:34 PM
|
|||
|
|||
|
Have a brilliant time and I hope Niamh keeps well.
You deserve these hols so much. Say hello to Cork for me xx
__________________
 Helen x Mum to Brian Jason William and Sherri Nanny to 9 William (31 ) is a TOF with an ASD (pof) OHS for TOF 1980 OHS for ASD 1986 Cardioversion for AF 2007 Waitihg for more OHS. Grandaughter Grace (6) is a TOF OHS for TOF 05 Grandson Liam (8 mnths) Large VSD ASD and PDA OHS 18/02/10 Married to David who puts up with us all
|
|
#6
25th July 2010, 09:18 PM
|
||||
|
||||
|
Have A Fantastic Time! It is sooooo well deserved!
xxx
__________________
Lois Mummy to Della 1/6/2007. Immunity issues, recurrent severe chest infections, constipation & overflow, GORD (resolved), food aversions, blue spells of unknown cause. Grade 4 murmur & bradycardia/tachycardia.
|
|
#7
26th July 2010, 09:09 AM
|
||||
|
||||
|
Hope you have a wonderful holiday hun, you all deserve it.
Love Nicole
__________________
 Mum to Liam 8/96 HH, Asthma, Asperger Syndrome,MigrainesHeather 7/98 complete AVSD with common AV valve ,hypoplastic AA, Mitral Valve Regurgetation, PDA,PHT ,4 caths, OH surgeries( 7/98, 10/98, 7/99 & 8/04)Artificial Mitralvalve, 2nd Pacemaker,complete Heartblock, Chylothorax after first surgery Warfarin ,Lisinopril Asthma Asperger Syndrome Sensory Intregration Disfunction Migraines married to Glenn, Gulfwar Syndrome, ME,Asperger Syndrome,uses Wheelchair outside the house
|
|
#8
26th July 2010, 12:31 PM
|
||||
|
||||
|
Have fun
 Lots of pics when you get back I hope xx
__________________
 Emyr, 9/10/05 DORV, TGA & VSD, FloWatch P.A Band 25/1/06 - 6/1/10
6/1/10 full repair treated at Alder Hey Mari, 25/2/08
|
|
#9
2nd August 2010, 10:11 AM
|
||||
|
||||
|
Cork days hello Helen we had the bestest time took in Blarney Castle on the way & both Niamh & I kissed the Blarney stone (for those of you that don't know to kiss the Blaney stone you dangle backwards from top of castle while a man holds onto your legs legend has it that this gives you the gift of the gab - least thing the 2 of us needed to do lol) Trabolgan surpassed my expectations, there was so much to do & the staff cd'nt have been lovelier we got home Fri & Niamh had her birthday party y'day - i'm exhausted, we're off to Leicester for PCD test on the 8.30 flight tomorrow morning. Wed I plan to sleep all day then catch up on here x
__________________
ErinMum to Niamh age 6 attending regular school (with full time carer) diag. 20 wk scan with Heterotaxia - left atrial isomerisn, atresia & bowel malrotation (surgical correction at one day), two left lungs, trachea adnormality, bronchietatis, uninary incontenience, absent spleen, gastro-oesephageal reflux, aspiration of liquids, coroanry sinus rhythm, PDA delayed closure, inferior vena cava abnormality, persistent chest infections & pneumonias, possible PCD & Charlie aged 3 HH
|
|
#10
2nd August 2010, 10:14 AM
|
|||
|
|||
|
So so glad you had a good time.
Will be thinking of you for your visit to Leicester. x
__________________
Helen x Mum to Brian Jason William and Sherri Nanny to 9 William (31 ) is a TOF with an ASD (pof) OHS for TOF 1980 OHS for ASD 1986 Cardioversion for AF 2007 Waitihg for more OHS. Grandaughter Grace (6) is a TOF OHS for TOF 05 Grandson Liam (8 mnths) Large VSD ASD and PDA OHS 18/02/10 Married to David who puts up with us all
|
 |
| Thread Tools | Search this Thread |
| Display Modes | |
|
|
Linear Mode
