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#1
25th January 2006, 10:20 AM
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Glenn`s diagnosis
Hi guys,
I `m not sure if you all know that Glenn was getting assessed for Asperger syndrome. He has got his final diagnosis today . I think he is releaved because know he got the answer why he always felt like he didn`t fit in. And with Glenn having Asoerger`s too helps him understand what the kids are goingt through too. he gonna have a chat to Liam later to tell him that they both got Asperger`s and that it makes you special not differend. Sorry to waffel about it but had to tell someone. Love Nicole
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 Mum to Liam 8/96 HH, Asthma, Asperger Syndrome,MigrainesHeather 7/98 complete AVSD with common AV valve ,hypoplastic AA, Mitral Valve Regurgetation, PDA,PHT ,4 caths, OH surgeries( 7/98, 10/98, 7/99 & 8/04)Artificial Mitralvalve, 2nd Pacemaker,complete Heartblock, Chylothorax after first surgery Warfarin ,Lisinopril Asthma Asperger Syndrome Sensory Intregration Disfunction Migraines married to Glenn, Gulfwar Syndrome, ME,Asperger Syndrome,uses Wheelchair outside the house 
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#2
25th January 2006, 11:38 AM
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Nicole glad you have got the diagnosis at last and hope that Glen can get some help now xxxx
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#3
25th January 2006, 12:03 PM
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Nicole
Glad you finally have a diagnosis - it doesn't change him, just hopefully makes it easier for you to get some support. Love
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Jackie X Mum to Dan 22, Josh 19 & Emily 16  ; ALCAPA (Takeuchi repair), RVOTO, Severe supravalvar pulmonary stenosis (balloon dilatation Mar 09),pulmonary valve regurg, mild mitral & tricuspid regurg, LV dysfunction. Leg length discrepancy due to femoral embolism/embolectomy(resolved by Epiphysiodesis Nov 05) Don't count the days; make the days count. Sign up now http://www.uktransplant.org.uk/ukt/h...on/consent.jsp
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#4
25th January 2006, 09:12 PM
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Glad you got the diagnosis, hope you get more support now.
hugs katie xx
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Mum to Connor 10, Luke 8 and Emily 3 who had a TAPVD repair in dec 03 at bristol childrens hospital. and is doing fantastic! 
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#5
25th January 2006, 09:18 PM
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Great news that you got a diagnosis finally Nicole. Now Glen might be able to get some proper help with everything.
You do brilliantly with your family... they're all lucky to have you!! Love Emma xxx
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Chloe is my heart child born 31/10/99 with COMPLETE AVSD. 3 OH surgeries. RBBB, mild mitral & and tricuspid leak. Mitral valve replacement.On enalapril & warfarin. Coaguchek. Treated at SGH and doing well! 'Some people only dream of angels... I've held one in my arms.' (Callum 26/10/07)
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#6
25th January 2006, 09:34 PM
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Hi Nicole really pleased you have finally got a dignoses. Now you know whats going on you can work with it & make life easier for Glenn. Luv Sheryl xXx.
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Mother to Shauna very healthy 12 year old. Mum to Timothy (11/07/06). Step Mum to Donna. Mother to Angel Anthony born with DORV. Very large non committed pulmonary VSD (32mm by 16mm) & a straddling tricuspid valve. Had insulin dependant diabetes. Pacemaker. Was NG FED. Was physically delayed. Had undesended testicals. Became an angel on the 5th of July 2005 aged 2 & a half due to severe Subaortic Stenosis & Left Ventrical Failure. Will always be in my heart & loved forever.
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#7
25th January 2006, 09:41 PM
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I am pleased that Glenn has got a diagnosis at last and hope he gets the support he needs. xxx
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Kerry, mum to Connor 9, Jamie 6 and Zack: 7/11/08. Jamie was diagnosed at 9 months with severe coarctation of the aorta, hypoplastic aortic arch, VSD, dysplastic mitral valve, dysplastic aortic valve & regurgitation, subaortic ridge , tricuspid valve regurgitation. Also has various developmental delays. Photo blog
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#8
25th January 2006, 10:15 PM
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Im so pleased to hear that Glenn has a proper diagnosis and that you can now get the help and support you need
Love pixie
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Jools - Mum to Lily born 14.12.04 who has an unbalanced complete AVSD hypoplastic right ventricle, ASD, pulmenary stenosis, mild right and left av valve component regurgitation, Reflux, (OHS - 4.5.05 pa banded and mitral valve repair, Glenn shunt and pa ligation 2.3.06 Gastrostomy 12.6.07 mini button 6.1.09 collateral abolition 19.4.10 fontan 30.6.10) Being treated at the Bristol Royal Childrens Hospital - wouldn't have it any other way Waiting to get off the rollercaoster once again Make everyday count 
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#9
27th January 2006, 08:36 AM
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Nicole,
pleased that Glenn got his diagnosis and now can get the help he needs. love Adele xxx
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 Mum to Owen and Ben.Owen was born 10/11/03 with TOF and branch pulmonary stenosis. Had repair aged 9months.Has slight tricuspid regurgitation and moderate pulmonary regurgitation, currently doing well.Ben H/H born 22/11/06.Also area contact for Nottingham.
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