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#1
22nd October 2006, 09:49 AM
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Cleft lip and pallett?
Hi all, my best friends sister has just had a baby boy who has been born with cleft lip and pallett, it
has been a massive shock to them all as wasn't picked up in scans, although I think this can be difficult. Just wondered if any of you have had any experinces with this either yourselves or friends as she is understandabley scared and now faces going through two quite major operations with him to rebuild his little face. Would love to hear any help/advice from anyone so I can pass this onto her, I think she feels a bit lonely and frightened at the moment for her little one. Thanks guys Love Kate xxx
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Yummy Mummy (I wish!!) to our beautiful daughter Florence,born 7 December 2005, diagnosed a week later with Truncus Arteriosus. Repaired at GOSH at 2 weeks old. Conduit replaced on 22nd Jan.07. 6 Monthly checks at GOSH. Married to my wonderful hubby,Charlie. Mummy to Albie, 4/02/08 HH gorgeous little brother to Florence. Also not forgetting ex Battersea Babe Bella the dog.(she is bonkers!!) 
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#2
22nd October 2006, 09:52 AM
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My friends littile girl was born with this aswell. I can see if she dont mind me passing in her email addy?? So sorry to hear thsi. Thinking of them..
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 Mummy to Nathan 5 HH with learning problems. Harrison 3 born with Mitral valve disease both regurition and stenosis (sever) now only has mild mitral regurg no surgery and now med free. And lacey born5/3/07 HH. All children Yummy!!
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#3
22nd October 2006, 10:03 AM
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Bianca was born with a cleft chin and bottom lip....not quite the same I know but we found the " cleft lip and palate Association" were a great help.
There is also a yahoo group called "CLAPA parents", which is just like CHD-UK but for parents with children with cleft problems.................. If your friend wants to e-mail me I'd be more than happy to help. Bianca has had some surgery for her chin etc at GOS....the results from this sort of surgery are amazing and have improved massively over the years. I'm sure it was a massive shock for your friend...it was for us! love Tracie xx
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Mum to Lewis 24,bit of a babe magnet! Liam 18,babe magnet in training! and Bianca 13,DORV,straddling mitral valve,subaortic stenosis,multiple asd's and vsd's.Pulmonary banding @6 weeks, Bi-directional Glenn and subaortic resection @21 months,Fontan@ 7 years old. Various cardiac caths.On 4th pacemaker now. Also born with Cleft mandible had various ops for that.Bianca is a mad, stroppy,funny, superstar,music mad guitar player. And apparently is an Emo/new rave hybrid(!)
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#4
22nd October 2006, 02:49 PM
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So sorry to hear this thinking of them
Love Tinaxxx
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