Heartline’s Governance, Priorities and Activities


STRUCTURE, GOVERNANCE AND MANAGEMENT

Heartline Families is a Charitable Incorporated Organisation registered with the Charities Commission No. 1153442.

The administration and management of the charity are the responsibility of the Trustees. There is no executive office and activities are carried out by Trustees and Volunteers and one occasional freelance administrator.

Volunteers undertake a considerable amount of work to support the services of the charity and to supply as many benefits as possible, including the online Forum (which is currently enabled via a Closed Page on Facebook while the website is being redeveloped with a new platform for the Forum), the Activity Weekends for Heart Children and Siblings, and the caravan holidays, amongst others.

Fundraising during 2014-2015 has resulted in improved sustainability for the future and a significant contribution to services arising from the provision of Grants and individual fundraising. This has also enabled the replacement of both holiday caravans providing holidays for families with a child with a heart condition over the next fifteen or more years.

The generosity of the individuals and trusts who have made this possible is greatly appreciated and the Board thank them sincerely.

There are some ‘hidden services’ which are provided by way of reductions in costs from suppliers and free services, all of which the Trustees are grateful for and in particular our long-time supporters Bison Grid Ltd for IT and Web development and support, Nick Mutton of XL Telecom Ltd for free telephone service, MedicAlert for medical bracelets, Golden Sands Holiday Park and Shorefield/Oakdene Forest Park for kitting out the new caravans with the main fittings.

OBJECTIVES AND ACTIVITIES

Heartline Families supports children with heart conditions and their families, whatever the condition, wherever it is treated.

Objectives

  • To identify and support “heart children” and their families
  • To develop an understanding of the children’s and families’ needs through information and discussion
  • To foster extended relationships between children, parents, the hospital staff and other interested parties
  • To provide amenities for child heart patients, not normally provided for under the National Health Service or other services provided by the State
  • To offer practical help to parents, children, hospitals, schools and other institutions interacting with or providing care for such children To promote and develop an understanding of family’s needs through information and discussions so they can be more effectively addressed
  • To invite receive contributions from persons and organisations, raising funds and organising suitable events for the benefit of the beneficiaries of the CIO
  • To carry out any lawful activity which shall further the objects of the CIO
  • To cooperate with other voluntary organisations with similar interests

How we help

Having a child with a heart disorder is very stressful, and no matter how helpful and supportive clinical staff are, most of the care and treatment of a child is given in his or her own home. Heartline’s families share their own hard earned experiences with other families and provide help and support unavailable elsewhere.

We aim to provide support for families, and to how the many effects that families can endure may be managed.

We publish the website (www.heartline.org.uk), newsletters, the Annual Review, our award winning Dental care for children with heart conditions, and Heart Children: a practical handbook for parents to provide as much information and support for families as possible.

Joining Heartline is free and may be made by application online. It is open to all families of children with a heart condition living in the UK and Ireland. Those living overseas may join and request and receive information through social media. Anyone interested in supporting heart families is also welcome to apply.

Bereaved families are welcomed as members to benefit from support and remembrance and contribute and share their own hard-won experiences.

 

 

Independent Bookkeeper

Smarties Bookkeeping Limited

The Music Room

Hollywood Estate

Hollywood Lane

Bristol BS10 7TW

 

Independent Examiner

Sumner & Moore Limited

Chartered Accountants and Registered Auditors

The Studio

377-399 London Road

Camberley

Surrey GU15 3HL

 

Heartline Families Constitution

The Constitution is the governing document of Heartline Families, a Charitable Incorporated Organisation.  It sets out the objects of our charity and what we are allowed to do while achieving them. 

These are the Objects:

The objects of the CIO are

1) to promote and protect the physical and mental health, and wellbeing of children with heart disorders and their families in the United Kingdom through the facilitation of appropriate social support, information and practical advice

2) to advance the education of the general public in all areas relating to heart disorders in children.

The implementation of the Objects of the CIO to relieve children who are sick, convalescent, or disabled from heart disorders and to help and support such children and their families are carried out through:

  • Identification of such children and their families
  • Developing an understanding of the children’s and families’ needs through information and discussion
  • Fostering extended relationships between children, parents, the hospital staff and other interested parties
  • Providing amenities for child heart patients, not normally provided for under the National Health Service or other services provided by the State
  • Offering practical help to parents, children, hospitals, schools and other institutions interacting with or providing care for such children
  • Inviting and receiving contributions from persons and organisations, raising funds and organising suitable events for the benefit of the beneficiaries of the CIO
  • Promoting/revealing the interests or problems of individual beneficiaries through the proper regulatory channels
  • Carrying out any lawful activity which shall further the objects of the CIOIf this link does not work kindly email denise.hadow@heartline.org.uk to request a copy.
  • You can read the full Constitution Here