Heartline supports children with heart disorders and their families, whatever the condition, wherever it is treated
FREE activity weekend for heart children!
Heartline Families PGL activity weekend for heart children ages 9 to 17. Heartline Families is running a PGL activity weekend for heart children-only this year at Caythorpe Court, Lincolnshire. Our long running activity weekend will be from Friday 27th July to Monday 30th July for up to 12 ch...
Reading Schools Children Helping Children
The following Reading Schools have raised an amazing £1232.20 for Heartline Families by holding a sparkling concert at the Hexagon in Reading in March. It was a captivating evening with amazing talent on display and some touching moments. It was all put together by a hard working team of ...
Cerys raises a massive £1,858.51 for Heartline
This is Cerys with her Dad, her cousin Aiden (Heart Child - though he looks pretty grown up to me :) ) and brother Sion all celebrating delivery of the massive cheque for the amazing £1,858.51 Cerys has raised by walking up Snowdon and other activities with the help of her family and friends. ...
James Denny Canal Capers 2017
James Denny, one of our generous supporters is planning a Canal Walk for 2017 in aid primarily of Families of Ocean Ward but Heartline always gets a mention and supports James' fundraising activities. At the Heartline 2015 Christmas party James kindly supplied the live music for the children's games...
Much Needed Financial Support – DLA, PIP all those acronyms don’t always mean much!
As many Families will be aware the access to financial support of any kind is hard to secure, even in the direst of circumstances. Many Families are turned down by DLA assessors for financial support for their children because the DLA assessors' guidance does not include children's heart conditi...
Tink’s Cape Horn Adventure – 46 days and 5,200 miles – Raising money for Heartline and others
Tineke Dixon is taking part in the Jubilee Sailing Trust trip from Auckland in New Zealand, via the Southern Ocean and around Cape Horn, ending in Stanley in the Falkland Islands, and is aiming to raise £15,000 for selected charities. The trip lasts 46 days and will cover 5,200 nautical miles o...
NHS to notify heart surgery patients of small risk of infection caused by heater cooler units
The NHS is today (March 2017) taking the precautionary step of writing to patients who have had certain types of open heart surgery to inform them that they may have a low risk of having contracted an infection caused by Mycobacterium chimaera (M. chimaera). Over the next two weeks, letters are b...
Heart Children: A Practical Handbook for Parents
For the past 30 years 'Heart Children: A Practical Handbook for Parents' has guided parents and families through the heart conditions that children may be born with or acquire, the treatments available, and how to deal with the many medical and social problems that they may have to face. This fifth...
Winter Magazine Landing on Doorsteps
The Winter edition of our newsletter will soon be winging its way to our families. If you'd like to receive a copy in your inbox (or post box), simply join us, for free, by completing the form. Each issue carries real life stories by heart families, news and information about the heart world. ...
Infection risks (low) associated with heater cooler units used in open-heart surgery
Infection risks (low) associated with heater cooler units used in open-heart surgery. NHS England have sent us this update on the issue of the very, very low risk of heart infections in children and young adults who have recently had open heart surgery. See below. Every patient, or their family,...
Your child’s hospital visit – there is now a national survey
A new patient experience survey specifically for congenital heart services has been launched across England. This survey is hosted online and designed to enable all patients - both adults and children - and their parents/carers to report on their experiences of care at specialist surgi...
Heartline Families’ Mission
Heartline Families is a charity which is made possible by the hard work and dedication of volunteers (from the newsletters, caravan holidays, wetsuits, to social media, informations guides, adventure holidays and so much more). In addition to this, we do not make profit and, instead, reinvest all...
Cerys Climbs a Mountain for Heartline
All the way up Snowdon; not 'a walk in the park' (well, yes we know it is a walk in a National Park, but not like my local park in London) and a great achievement for (now) 10 year old Cerys. On Saturday it was pouring with rain in Snowdonia (what a surprise!) so Cerys could not do her sponso...
Jude raises a hair-razing amount for Heartline!
My name is Jude I'm 10 years old, I was born with TOF with absent pulmonary valve. I had asked my mum & Dad if I could do something to raise money for Heartline as my mum has always read me the stories from the Heartline magazine, she would always get upset as she said it always brought it back ...
Activity Weekends for Heart Children and Siblings
We are running two PGL Activity Projects in August 2016 at Boreatton Park, Shrewsbury for 12 heart children aged 9 to 17, from 29 July to 1 August and for 12 brothers and sisters of heart children—again aged 9 to 17, from Friday 5 August to Monday 8 August. We have spaces available so, if y...